7/16/2008

Thankful......

Well, I'll be honest with you, I've been working through some issues lately, and quite frankly, I'm just tired..... I'm tired of thinking one day everything is going to be ok, and the next day feeling sorry for myself. ( I know I shouldn't do this, but sometimes it's hard not too.....just being honest here) I haven't wanted to post about this because I wanted this blog to be about our life, our happy life, not the "not so happy" life. But as we all know, that's life, some good, some bad.
Another reason I'm posting this is because I sometimes feel better about things if I write (type) them down, and just get it all out! And in two years from now, I want to be able to look back at this and know what I was dealing with during this time. And another reason, God totally lead me to two other blogs tonight of women with the same condition I have. ( I just stumbled upon these blogs off random other people's blogs??) One of them lost her little boy when she was 36 weeks pregnant, and the other lost her twin boys. Both of these women have my same condition. A condition, that I have an appointment to see my Dr. about again this morning. So I feel like maybe I'll be able to connect with other women out there who have this same condition, and we can all work through it together, you know, help each other out, lift each other up....that's what we as women do!
So, now for the "condition". Last year, after my second miscarriage in October, my dr. decided to do further testing and I tested positive for MTHFR, (what the letters stand for is way too long for me to type!) Basically it is a blood clotting disorder/folic acid deficiancy, etc. It puts you at high risk for blood clots, miscarriage, stillbirths, placental abruption, etc. I also found out I have a positive ANA (anti-nucleic antibody..sp?), & tested positive for anti-phospholipid antibodies, etc. My rheumatologist thinks that I may develop Lupus later in life.....who knows????? Or, she said it could be that I'm at the beginning stages of fibromyalgia, based on my symptoms. Again...who knows??? The hard part is NOT knowing. You've been told you have all these conditions, but there aren't any definitive answers. I know that God is in control, and he will not give you anything you can't handle. But I'm just going to be real honest here and say, I'M STILL SCARED!! I want to be around for my family for a LONG time and the thought of blood clots, lupus, etc. scare me.
We really want a second baby, and the road to get there will be long and scary on one hand, and happy and blessed on the other. I am already on a really high dose of Folic Acid, because this condition makes your body not absorb folic acid, so you have to basically "overdose" yourself on folic acid to get your body to accept any. And, I have to take a daily baby aspirin from now on. If I get pregnant again, I will have to take daily Lovenox/Heparin injections for the entire pregnancy, plus 6 weeks after delivery, when the risk of blood clots is very high.
Miscarriage, stillbirth, the loss of a baby/child is so devastating. I guess that's why I'm having such a hard time with this. I'm scared of experiencing another miscarriage, or worse.
July 3rd, just 14 days ago, should have been my due date for our 2nd child. I shouldn't be up typing, I should be up with a newborn trying to get him or her back to sleep. But I know that God's timing is always perfect, no matter how hard that is to accept at times.
At the same time, I am so very thankful.....thankful for all of God's blessings.
I've always been so thankful for Nathan, I've always known, he is a miracle. (I had a miscarriage before I had Nathan and was told I would have a hard time carrying a baby b/c of a uterine problem, that I had to have surgery for to correct) But now more than ever, I am in awe at what a wonderful miracle he is! You are born with MTHFR, so I had it when I had Nathan, but we didn't know it. Thankfully, I didn't develop a blood clot and cause him and me both to die when I was pregnant with him. Our God is a wonderful and faithful God!
Even though I am a little anxious and scared about all of the above, I'm also so very thankful.
Thankful to have a healthy 2 year old little boy, and thankful for my loving family and friends, and thankful for my health!
I also trust that God will help us through whatever may come next!

4 comments:

Caren said...

Kristi

That is the hardest thing that I have ever had to read. I can't understand what a woman goes through with a miscarriage...only know what it is like to take forever to get pregnant. I will always keep you and Brian in our prayers and will always hope for a happy ending in your family story. If it makes you feel any better about the lupus thing...my aunt has had it for over 20 years-there are good days and bad days, but when I saw her in May she was really healthy! I can only imagine how it is...I have a problem with pain in all of my joints, but they have never found out the cause...been tested for lupus, etc. I will always think of you and send positive messages your way...hope for a baby soon.
Caren

Teahousejunkie said...

I am so glad you shared your story -- it is such a testimony! You are so brave for wanting to keep trying & so inspiring too. I'm glad you wrote about it so I can start praying for you very specifically!!

John and Amanda said...

Kristi- I am waaay behind on checking blogs. I must confess I mainly scrolled through the rest of the blogs between teh cookbook and this, but this caught my eye and I read it all.... my heart is just breaking for you. I can't say anything more than you already said as far as having a great understanding that God is really in control of it all. I am so glad to know that you are clinging to the word in all of this.

Psalm 145 is one of my favorites and it reminds us that God is faithful to all those that love Him and he not only hears the desires of our hearts, but he longs to give us the desires of our hearts, but in His time.

Stay strong and stay in the word! God will grow you in ways you can not even imagine during these little mountains in life! He is our Faithful Father.

Hugs!

Maggie Pelton said...

Thanks for sharing. I hope it did your heart well. It always does mine. I hope your dr apt went well and that you're feeling peace about what lies ahead. So sad for the loss of your precious babes.